Associations and Support Groups

This is a set of links to websites around the globe belonging to patient associations and support groups involved with human neuromuscular genetic diseases.
If you think this page is missing a specific link, please don't hesitate to contact the administrator. Help us improve our service.

Muscular Dystrophy Associations Worldwide

Flag Australia
  Flag Canada
Flag England
  Flag EU
Flag Ireland
  Flag Italy
Flag the Netherlands
  Flag Poland
Flag USA
  Flag France
Flag Germany

Information and Support

Logo CMTnet
Information about Charcot-Marie-Tooth syndrome (CMT)
  Logo Myasthenia Gravis
Repository of useful information, links and facts about this disease.
Families of Spinal Muscular Atrophy, main site dealing with this genetic disease.
  Logo UMDF
United Mitochondrial Disease Foundation
Logo FSH Society
FacioScapuloHumeral Muscular Dystrophy Society.

Other Support Resources

Logo Parent Project
Muscular Dystrophy research treatment hope - sites all around the world (Ohio, USA).
  Logo Telethon Italy
Research against muscular dystrophy and other genetic diseases (Rome, Italy).
Logo Family Village
A Global Community of Disability-related Resources (Wisconsin, USA).
  Logo Neurology Web Forums
Neurology-related talk forums
(Massachusetts General Hospital, USA)
European Neuro Muscular Centre
(Oxford, United Kingdom).
  Logo EYO
EAMDA Youth Organisation
(London, United Kingdom).

Other resources:
  About this page:
Revisors:  G.A. Danieli, F. d'Alessi.
Last update:  July, 2nd, 1999.

Layout & programming by Fabio d'Alessi, 1999
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